SLHD My Wishes
Advance Care Planning

Personal Stories:

Connie

Healthcare decisions may be very difficult if you have not had the chance to discuss health issues earlier, or are not confident communicating with health care staff. Please watch “Connie’s Story”  (3 minute) video.

Ada

" When Stephan can’t make decisions for himself about his health I make them for him, but every day is different.
Sometimes he has clarity and can understand things, that’s when he makes his own mind up.
At other times he doesn’t comprehend things enough to make his own mind up and I make decisions for him.
I never know what to expect.
If things are urgent and he is having an unclear day, I will jump in and make decisions for him right away, otherwise I will wait until he can decide for himself”.

Even though dementia is a steady decline there are often moments when Stephan may be open to discussing end of life issues. It is a good idea when Stephan is clear to discuss important things to him so that Ada will have peace of mind knowing that care will be focused on what his wishes are. Early proactive discussions are important as these may help Ada’s emotional stress when making decisions on his behalf and can reduce confusion and conflict when making decisions on her own.

Stephan

“But there is nothing wrong with me”

It’s normal to be in denial. Some options include:

  • Make it clear that the conversation is for everyone (we never know what is going to happen)
  • Talk about what you would like as well
  • Have the conversation in small simple bites
  • If the conversation is too overwhelming, would you rather have someone else included to facilitate the conversation